Tag Archives: MS

VIFF 2019 Review: When We Walk

jason-dasilva

When We Walk mostly continues off from When I Walk ended. It starts with the creation of a family, but an eventual end to a marriage, and a life whose years appear numbered.

Many of you remember that I saw When I Walk. When We Walk appears to be the sequel, but it’s a lot more.

The first images we see are images of 1988 when a ten year-old Jason Da Silva is operating a videocamera for the first time and you hear his father instructing him how to use it. Then you hear Jason’s voiceover, but it’s not to us. It’s to his son Jase. You notice Jason’s voice is getting weaker.

The film then goes on to what has happened since When I Walk ended. When I Walk made its debut during Sundance 2013. On February 7, 2013, Jason Da Silva Jr. (nicknamed ‘Jase’) was born. It seemed like Jason’s dream is coming true and Jason, Alice and Jase were ready to be their own all-American family in their home in New York City.

Throughout the film, we see time is always the deciding factor and sometimes time cannot be kind. First off Jason’s MS has worsened to the point he needs 24-hour assistance. When he goes places with Jase, he can’t always follow up because there are many places and park paths people in wheelchairs can’t go. On top of it, Alice is feeling the burnout. 50% of marriages to a person with a disability fail because the fully-able partner gets burnout. Alice is obviously feeling it and the strain in their marriage can be noticed. In addition, Alice has more of a desire to live in Austin, Texas.

Jason tries to make it work by seeing if he can move to Texas. However New York is one of the best states in helping people with disabilities while Texas is one of the worst. Jason can live a normal life in his apartment in NYC with nurses coming to visit him and even do filmwork. In Texas, the most that Jason could get is being confined to a nursing home. Surrounding states are not much better, if any better at all. It becomes clear Jase is better off living with Alice in Texas and Jason in NYC.

Jason tries talking to Jase through Skype. Jase welcomes it at first, but Jase becomes unhappy to the point where he throws the camera. Jason is determined to see Jase more and flies out to Texas once every two weeks. However all the flights are proving to take a physical toll on him.

Jason tries to get the legal system to work for him by having Jase fly out from Texas more to see him. In the meantime, his physical condition worsens so much, he can no longer use his hands. He’s now a quadriplegic. Anytime, the next move will be he will lose his voice and then the next move is Jason will die. Jason tries to adjust to his quadriplegia by getting a new wheelchair and his assistants learning how to handle him. Jason tries to learn new ways of making his films. Then a court ruling happens. The New York family courts decide Jase can make visits once every two weeks to New York. Jason’s at the airport to greet him and Alice each time and their able to spend their quality time together. The film ends with Jason wrapping up the film as if he was wrapping up a letter to Jase. Also leaving the hint that the next film coming is When They Walk.

For those that saw When I Walk, they would have gotten a sense that there would be a continuation. First Alice was asked about being married to a person with a disability. As she answered, she talked of the fear of his worsening condition and breaks down. The film ended with the ultrasound of the successful pregnancy. When We Walk is a continuation. It’s not a sequel, but a new chapter. When I Walk gets released to a lot of acclaim and even an Emmy win. Jase is born. The dream of having his own family is true for only a few years. We see a marriage fall apart. We see Jason’s physical condition get worse. We she Jason try to make the efforts to see Jase as often as they can, even though they live halfway across the U.S. We see Jason reassess his own life and also what kind of husband he was to Alice. We see Jason reach out to his family and to his parents who both live in different cities. We see how others with disabilities struggle in different states. The film is a very telling story about a man with a disability, a family struggling to be together, and a race against time.

The film is also an eye-opener. The film shows the audience what it’s like not just to have a disability but a disability that is taking more and more of a toll on a person. We see as Jason is becoming more and more helpless. Jason even fills in the details of the physical declines that are yet to come. Nevertheless, he’s making the effort to keep his filmmaking skills going. He’s also making the effort to live a better more respectful quality of life by living in NYC. We are made aware just how being a person with a disability state by state can be worlds apart, especially for someone like Jason. We hear from those in Texas of how people with disabilities that are even more able than Jason are denied the type of quality of life Jason is getting. Hearing what the disabled in Texas have to say about what they’re denied adds to the film.

The film is not just a voice of one with a disability, or of many with disabilities. It’s also an intimate letter to his son Jase. Jason knows of his condition and how it will slowly degenerate his body over time. We even see how Jason goes from a paraplegic around the time of Jase’s birth to a quadriplegic around Jase’s fifth birthday. Jason makes clear his voice will be the next to go and then he will die. His condition of MS is a case of him dying slowly and slowly. Jason wants to make it like a letter to Jase if he dies before Jase is ever able to know him. You can understand why Jason narrates the film like a letter to Jase instead of narrated it in basic fashion. We the viewer also grow in knowledge to this letter. We understand Jason’s plight. Also we learn of his secret heartache. It makes pure sense Jason did this film this way.

Also we’re made aware that his next film will be When They Walk. It leaves those of us who know the story eager to see it when it comes out. Also it makes us nervous because we anticipate that this will be Jason da Silva’s last work ever.

When We Walk can be seen as one of many things. It can be seen as a glimpse of life played out, Jason’s personal message to his son, a sequel to When I Walk, a message of advocacy, or even a story about one finding the will to live despite all that is happening. One thing I see it as is a film that gives a voice to those that rarely get heard. I’m glad he does this.

BONUS: Many of you saw the website where Jason contributes. That being the site letting people with disabilities input to places, restaurants and buildings informing if they’re disability-friendly or not. The site is AXSMap. If you have a disability and you would like to contribute to the site, click here.

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VIFF 2013 Review: When I Walk

Filmmaker Jason DaSilva won't let MS stop him from living his life or even making films in When I Walk.

Filmmaker Jason DaSilva makes his MS and his life the focus in When I Walk.

When I Walk is a unique documentary where the documentarian is the complete subject of the film. It’s a very personal documentary. Possibly because this may be the last film he ever makes.

We meet Jason da Silva, a promising young documentarian of Indian heritage living in Vancouver. He lived the life of a budding 25 year-old filmmaker and had a promising future ahead. That all changed in 2006 during a family vacation in St. Maartens. His legs weakened and he was diagnosed with multiple sclerosis. His condition wasn’t fatal but it would lead to weakening of his body and other deteriorations. Jason was encouraged by his mother not to allow his disease to limit what he can do. So Jason decided to make his battle with MS his subject of his next film.

Jason is determined to fight it or deal with it the best way he can. He tries his hands as many different types of medicines and healings. He first travels to his parents’ hometown of Goa, India where he agrees to Ayurveda medicine. He then goes to Lourdes, France on the advice of his very religious Catholic grandmother and receives healing water. He also arranges an appointment for a wonder-surgery that’s a breakthrough in fighting MS and is highly advertised on Youtube by people cured through this surgery. The Ayurveda medicine procedures didn’t work. Lourdes didn’t heal. And this ‘wonder surgery’ only gave limited improvements that didn’t last.

Family unity is another theme in the film as Jason comes from a close family with relatives in Canada, New York and back home in India. His mother is the one who’s trying to encourage him to stay positive and hold his head up high. Though she cries near the end of the film and admits she didn’t know how bad it was and how limiting it would be. There’s another time when he visits a relative in India and tries to find out if his MS is inherited.

Despite his illness and its dehabilitation over time, Jason continues to be strong. He talks of difficulties going to restaurants and various other places in New York. He meet up with another person in a wheelchair and they decide to organize a blog of wheelchair accessible locations in New York. It’s not just simply taking restaurants that advertise themselves as ‘wheelchair accessible’ at face value. Both Jason and his colleague go to the various locations and test out how ‘wheelchair accessible’ the places are in both the facilities and the washrooms. Jason also purchases various filmmaking software and various computer accessories to assist him with his filmmaking as his body functioning lessens over time. They show one gadget which assists in functions as Jason makes commands in a microphone. Some days it’s so hard to talk, Alice–who I will talk about shortly– has to learn filmmaking and its functions in order to complete certain jobs for Jason.

Possibly the biggest plot of the documentary is not just simply overcoming his condition of MS in daily life but his relationship with Alice Cook. Before Alice, Jason was a frequent dater in the film making scene. He first thought MS would be the end of the dating road. Then he went to a support group for people with MS offered by his mother. He met a woman named Alice who was around the same age as him. Alice is a fully able person who attended the sessions in support of her stepfather who has MS. Alice took an interest in Jason. They started dating. Alice started helping and assisting Jason in his daily life. Then in 2009 they married. They even show Jason using his scooter with Alice on the back and a Just Married sign on the seat.

However right after the marriage came some new hurdles. First was the stress of being married to a physically limited person. Alice is a very cooperative and a very supportive wife but the stress does take its toll and Alice needs a vacation for a week to give herself relief. One of the things she sacrificed in her relationship with Jason was her love of hiking. She would have the chance to hike again after so many years. There’s also the effort of the two to have children. The film takes us to the doctor’s office where Jason learns he’s fertile and conception is possible. The first conception works but Alice miscarries.  SPOILER ALERT: However the film ends with Alice showing Jason the result of her home pregnancy test: a positive. The film’s last scene shows the two in the ultrasound lab and the screen showing a healthy fetus.

One thing about this documentary that stands out is how personal this is for the filmmaker. Before MS, Jason was no simple documentarian. He was already showing promise at a young age with short documentaries like Olivia’s Puzzle, Twins Of Mankala and a Song For Daniel. He also had two feature-length documentaries to his credit: Lest We Forget and From The Mouthpiece On Back. One would figure MS would be an end to a filmmaking career at such a young age but Jason’s determined not to let it stop him. The film is very personal as it not only hides nothing of Jason but also of Alice. We see an image of blood in the bathtub when Alice miscarries. We also hear Alice tell her side of the story at times and she holds nothing back. In fact there are times when she’s in tears when she talks of the stress of managing a physically challenged husband and her fears for the future as his condition deteriorates over time. This film is as much about the struggle of the two as it is the triumph. Even Jason admits there are times when he can’t handle it or wants to give up.

Another addition to the documentary is the animation. Often the documentary will go to animated images of Jason in his life, MS eating away at him showing the MS as ‘bugs,’ and various other images. That is another added bonus to the documentary that keeps it from getting mundane. Although the animation is not the most professional, it still adds to the documentary.

As a documentary, it’s questionable whether this is worthy of box office release. It has already made appearances at the Sundance Film Fest and the Hot Docs Film Festival where it even won an award. It’s still possible. One thing I know is that it is definitely eligible for broadcast on a documentary television channel.

When I Walk is a film worth seeing. It’s as truthful about the struggles and the setbacks as it is about the triumphs. Definitely worth seeing for all types of people.

BONUS: If you want to learn more about Jason and When I Walk just go to: http://wheniwalk.com/ There’s even a mailing list to subscribe to.